The Canadian Disability Association is seeking young people to participate in a current research trial. Specifically, they’re seeking youth aged 15-17 with Autism Spectrum Disorder, Cerebral Palsy, Epilepsy, Fetal Alcohol Spectrum Disorder or Spina Bifida to help test a new app about health care transitions. Right now they’re seeking youth from Alberta and Ontario, but will soon be looking for youth from other provinces as well.
Eligible participants will earn up to $40 in gift cards ($20 after each online study visit). To join the study, contact: firstname.lastname@example.org
See videos about the study here:
What is this study about?
The MyREADYTransition BBD App was created to help youth prepare for health care transition. That’s when youth make the change from getting services from the children’s health care team, the children’s hospital or the children’s treatment centre to looking after their own health in adult services. We hope the app will help youth with things like learning about their health, knowing what questions to ask and when to ask for help.
Why is the study being done?
This study will tell us if there is a benefit to using the app. All youth will get the same care they have been getting. Half of study participants will use the app and half will not. There’s an equal chance of being in either group. After the study is done, youth in both groups will have a chance to use the app.
Who can participate?
You may be eligible for this study if:
– You are 15, 16 or 17 years old
– You have Autism Spectrum Disorder, Cerebral Palsy, Epilepsy, Fetal Alcohol Spectrum Disorder or Spina Bifida; and
– You are thinking about being more independent in taking charge of your own care, such as asking or answering questions when you are with a doctor or nurse.
Learn more about this study at: