Research Study | November 4, 2019

 

 

 

 

Invitation letters

Adulthood among individuals with autism spectrum disorder (ASD)

 

Principal Investigator (PI)
Parisa Ghanouni, PhD, Assistant Professor
Dalhousie University
Department of Occupational Therapy

Research Assistants (RA)

Laura Eves
Research Assistant, Occupational Therapy
Dalhousie University

Jennifer Blok
Research Assistant, Occupational Therapy
Dalhousie University

Samantha Radford
Research Assistant, Occupational Therapy
Dalhousie University

 

We are researchers at Dalhousie University. We are conducting a research project investigating adulthood and
resources to support adults with autism spectrum disorder (ASD).

Currently, there is little information about the support and services available for adults with ASD as they grow
up. The purpose of this project is to uncover factors and features of resources or technologies that improve the
adulthood experience from perspectives of adults with ASD, their parents, and service providers. This project
will generate new understanding about experiences of adulthood among individuals with ASD, which can help
us create new strategies to support them.

You are being asked to participate in this project because you are an adult living with high functioning ASD
aged 25 years or older, or a family member/parent of such a young person, or a healthcare service provider of
people living with ASD. If you are interested in participating in this research study, the following information
will give you more detailed information.

Purpose
The goal of this study is to have a better understanding of adulthood and resources that are available to support
experience of people living with ASD. Your participation will allow us to better understand this process in order
to better support adults.

Participation
Participation will require your involvement in an interview either face to face or over phone or via Skype,
whichever is convenient for you, to share your ideas and perspectives. We will also ask you to answer some
basic questions describing yourself through a confidential online survey platform or filling out paper-based
demographic survey. By participating in this interview, you will be given a gift card (e.g., Amazon, based
on your choice), valued at $30.

If at any point during the interview you decide to discontinue participation, you will also be reimbursed. Please
note that compensation is not contingent on completion. Your participation in this study is completely
voluntary. You may choose to stop participating at any time prior to, during, or after the interview.

If you choose to participate in this study or have any further questions, please do not hesitate to contact the
research team at via email at resource@dal.ca or call 902.494.8434.

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