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SUMMARY:Strong Yet Flexible: Ehlers-Danlos and Autism: Terri Pasieckza
DESCRIPTION:Join Terri Pasieckza for a deep dive into the unique connections between Ehlers-Danlos and Autism – a powerful journey awaits! This session is part of the “Strong Yet Flexible: Ehlers-Danlos and Autism” learning series\, brought to you by Autism Edmonton and The Sinneave Family Foundation. A series focusing on Autistic women who also have Ehlers-Danlos syndrome. \n\n\n\nExplore the critical intersection of Autism and Ehlers-Danlos Syndrome (EDS) and why understanding it matters. Many Autistic individuals also live with hEDS\, which can affect everything from sensory experiences to daily functioning and mental health. This session will highlight how overlapping challenges—like chronic pain\, fatigue\, and heightened sensory sensitivity—impact quality of life\, self-advocacy\, and access to appropriate care. \n\n\n\nJoin us to learn why recognizing this overlap is essential for families\, educators\, healthcare providers\, and anyone supporting neurodivergent and disabled communities. Gain insights into practical strategies\, advocacy tips\, and ways to create inclusive spaces that truly meet diverse needs. \n\n\n\nWednesday\, February 1112:00 p.m. – 1:00 p.m.Online via Autism Edmonton \n\n\n\nRegistration for this event is via Autism Edmonton’s website. You can register by clicking the button that says\, “Register”. \n\n\n\n\nRegister\n\n\n\n\n\n\n\n\n\n\nAbout the Facilatator: \n\n\n\nTerri Pasieckza is a dedicated and resilient homeschooling mother of two teenagers\, all navigating life with neurodivergence and Hypermobile Ehlers-Danlos Syndrome (hEDS). After a 15-year teaching career was cut short due to her health\, she has devoted herself to supporting her family while advocating for understanding and accessibility in both medical and societal spaces. \n\n\n\nHaving lived with the symptoms of EDS and its comorbidities for her entire life\, she brings firsthand experience and deep knowledge of navigating complex medical systems. She is skilled at researching\, asking critical questions\, and advocating for herself and her loved ones\, ensuring that their needs are met with dignity and respect. \n\n\n\nPassionate about education\, health advocacy\, and challenging societal and medical misconceptions\, she strives to raise awareness about the realities of living with hEDS and neurodivergence. Her work emphasizes empowerment\, self-advocacy\, and creating space for voices often overlooked in mainstream conversations.
URL:https://sinneavefoundation.org/event/strong-yet-flexible-ehlers-danlos-and-autism-terri-pasieckza/
LOCATION:Online via Autism Edmonton
CATEGORIES:Presentation,Special Events
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