This webpage lists studies that are currently accepting applications. Click on a green bar below to learn more about the study and how to participate.
Researchers at University Health Network are recruiting youth between 12-17 diagnosed with autism, cerebral palsy, or acquired brain injury, their parents, and individuals with knowledge of healthcare transitions to examine a study that looks at transitioning to adult health and community programs.
Study details
Participants will share their experiences and expectations around transitioning to adult health and community programs. They will also share their perspectives on what an ideal virtual peer navigation program would look like.
Participants will complete a one-hour interview via Microsoft Teams and will be compensated for their time.
Who is eligible to participate?
- Youth 12-17 diagnosed with autism, cerebral palsy, or acquired brain injury, and their parents
- Healthcare providers with experience or knowledge of healthcare transitions
How can I participate?
If you are interested in participating in this study, please contact Eleni Patsakos at eleni.patsakos@uhn.ca. Applications will be accepted until the end of February 2025.
Researchers at the University of New Brunswick are interested in hearing the perspectives of Autistic adults (21+ years of age) on their job experiences and job satisfaction. In addition, they are interested in hearing from those who are employed or have been employed in the past.
Those selected to participate in the study will complete an online survey which will take approximately twenty to thirty minutes to complete.
The University of New Brunswick Research Ethics Board has approved this study (REB #2023-177).
Who is eligible to participate?
- You have an autism diagnosis (autism, Asperger’s, PDD-NOS),
- You are currently working or have worked in the past,
- You are at least 21 years of age.
How can I participate?
If you are interested in participating in this study, please click here to apply. You can contact Dr. Barbara D’Entremont at bdentrem@unb.ca for more information or if you have questions. Applications to participate in the study will be accepted until February 17, 2025.
Researchers at University of Calgary are recruiting Autistic women (18 years or older) who were diagnosed with autism before age 5 to understand the camouflaging experiences of early-diagnosed Autistic females. Camouflaging is defined as a set of intentional behaviors and cognitive strategies used by Autistic individuals to hide their Autistic traits.
The University of Calgary Conjoint Faculties Research Ethics Board has approved this study (REB24-0616).
Study details
Participants will complete a demographic survey to assess their eligibility. Those eligible will complete a one-on-one interview (in-person at the University of Calgary or virtually via Zoom), which typically lasts between 30 to 45 minutes. Participants who are deemed eligible to participate in the study will be entered to win one of two Amazon $25 dollar gift cards.
How can I participate?
If you are interested in participating in this study, please contact Bethany Torraville (bethany.torraville@ucalgary.ca) or Dr. Adam McCrimmon (awmccrim@ucalgary.ca). Applications will be accepted until the spring of 2025.
Researchers at IWK Health and McGill University are conducting a study of the adoption and scaling up of psychosocial interventions for children and youth with neurodevelopmental disabilities and their caregivers.
The study is conducted in English and French, and seeks to identify the processes Canadian decision-makers go through, and the criteria they consider when choosing to adopt psychosocial programs for children & youth with neurodevelopmental disabilities (NDD) and their families.
NDD include ADHD, autism spectrum disorders, cerebral palsy, fetal alcohol spectrum disorder, Down syndrome, intellectual disabilities, global developmental delay, learning disabilities, or other less common conditions.
Furthermore, the study is also hoping to look at which factors Canadian scientists and researchers consider when designing and planning to make available the interventions they are developing.
The study consists of a 15 minute online survey and an optional 30-60 minute interview.
IWK Health has approved this study (REB #1030217).
Who is eligible to participate?
- Decision makers in sectors such as education, healthcare, and community and social care where families receive services and you are responsible for choosing psychosocial interventions to support children / with neurodevelopmental disabilities and their caregivers
- Or researchers / scientists who design, adapt, or test the effectiveness of psychosocial interventions or have experience developing, testing, and or scaling up interventions for children / youth with neurodevelopmental disabilities and their caregivers.
How can I participate?
If you would like to learn more about the study, please click here.
If you are interested in participating in this study, please click here to apply.
You can contact bridgingthegap@iwk.nshealth.ca for more information or if you have questions. Applications will be accepted well into the New Year.
Researchers at Precision Medicine in Autism and the University of Alberta are conducting a study on identifying the challenges and opportunities for implementing a standard of care genetic testing for autism and neurodevelopmental conditions.
This study aims to understand the experiences and opinions of people on the autism spectrum, their families, and the physicians who care for them on genetic testing for autism. The goal is to identify barriers to genetic testing and find ways to improve patient care and the healthcare system in Alberta for those on the spectrum.
It will take approximately two hours to complete the study and participants will be asked to complete an online survey with questions about genetic testing for autism. Additionally, some participants may be invited to a follow-up interview to share more in-depth experiences.
University of Alberta has approved this study (REB ID – Pro00145198).
Who is eligible to participate?
- Individuals who have received a formal diagnosis of autism and their families and reside in Alberta
- Physicians who practice in Alberta and care for individuals on the autism spectrum
How can I participate?
If you would like to learn more about the study, please click here.
If you are interested in participating in this study, please contact Dr. Daniel Moreno De Luca or the PRISMA research staff at prisma@ualberta.ca or call (780) 492-4467. Applications will be accepted until the end of 2025.
Researchers at University of Calgary are conducting a study on the assessment experiences of Autistic adults who recently underwent a first-time autism assessment during adulthood.
This study aims to learn about these experiences among Autistic adults diagnosed during
adulthood to help clinicians develop strategies to better support and understand Autistic adults through their assessment process, and enhance the intervention approaches that they suggest.
Participation is in two phases. Phase 1 is an online survey that takes about 30-45 minutes to complete covering the topics of trauma, coping, and wellbeing.
Some participants will then be invited to Phase 2, which involves an informal interview that will take about 45-60 minutes, where you will get an opportunity to discuss your experiences regarding the assessment process in more detail. A $25 dollar gift card will be provided to the participants who are chosen to take part in Phase 2 of the study.
University of Calgary Conjoint Faculties Research Ethics Board has approved this study (REB ID – 24-0975).
Who is eligible to participate?
- You are an Autistic adult between the ages of 18-29 who received an autism diagnosis in adulthood,
- You speak English,
- You were diagnosed in Canada.
How can I participate?
If you would like to learn more about the study and to participate, please click here.
If you have additional questions, please contact Abdullah Bernier at abdullah.bernier@ucalgary.ca
Applications to participate in this study will be accepted until February 1, 2025.